https://www.connorschances.com/achancefortherestofus daily 0.75 2021-07-02 https://www.connorschances.com/achancefortherestofus/strength-forgiveness-fp7c2 monthly 0.5 2022-08-03 https://www.connorschances.com/achancefortherestofus/strength-forgiveness monthly 0.5 2021-08-16 https://www.connorschances.com/achancefortherestofus/category/Parenting monthly 0.5 https://www.connorschances.com/achancefortherestofus/category/Special+Needs+Parenting monthly 0.5 https://www.connorschances.com/achancefortherestofus/tag/Parenting monthly 0.5 https://www.connorschances.com/achancefortherestofus/tag/epilepsy monthly 0.5 https://www.connorschances.com/achancefortherestofus/tag/toddlers monthly 0.5 https://www.connorschances.com/achancefortherestofus/tag/developmental monthly 0.5 https://www.connorschances.com/achancefortherestofus/tag/mom+guilt monthly 0.5 https://www.connorschances.com/achancefortherestofus/tag/speech+therapy monthly 0.5 https://www.connorschances.com/achancefortherestofus/tag/therapy monthly 0.5 https://www.connorschances.com/achancefortherestofus/tag/Special+Needs+Parenting monthly 0.5 https://www.connorschances.com/achancefortherestofus/tag/alternating+hemiplegia+of+childhood monthly 0.5 https://www.connorschances.com/achancefortherestofus/tag/delays monthly 0.5 https://www.connorschances.com/achancefortherestofus/tag/Special+Needs monthly 0.5 https://www.connorschances.com/achancefortherestofus/tag/physical+therapy monthly 0.5 https://www.connorschances.com/achancefortherestofus/tag/support monthly 0.5 https://www.connorschances.com/achancefortherestofus/tag/ahc monthly 0.5 https://www.connorschances.com/achancefortherestofus/tag/occupational+therapy monthly 0.5 https://www.connorschances.com/home daily 1.0 2025-01-10 https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/1581487293127-BEUVOOY34BAUM7RMHRA4/7+disorders.jpg Home - This devastating disease touches 1 in 1,000,000 families. Commonly misdiagnosed as Epilepsy, children all over the world suffer every day with no answers. We need awareness and a cure. Learn more about AHC here. https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/1581487439955-SJ9H4UFH8QR0IZJIY96X/Website_FeaturedImage_Steps.jpg Home - Let’s end this. Research is happening now and a cure is coming. The Alternating Hemiplegia of Childhood Foundation and others are helping us to get closer every day to these breakthroughs. Find out what’s being done and where your donation goes. https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/2b1076e7-4591-4c39-80dc-e7c931ad156c/IMG_7826.JPG Home Thank you. From the bottom of our hearts from our entire family, we appreciate the love, prayers, support and generosity. We will save Connor’s future and it will all be thanks to you. @lizmaddoxphotography https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/a9f5bfee-91ae-4044-896b-2cad6ad00824/IMG_2379.jpg Home https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/4eeb2357-5c4a-4ea5-89b9-4c54733d5fd2/IMG_2810.jpg Home https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/c3f390fc-80d9-450b-aec1-ffdd3e21af1f/IMG_2795.jpg Home https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/ddf016cc-9f79-495b-9aa1-0cf5d6171d29/IMG_2282.jpg Home https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/f425cab0-3d00-4d67-9e1d-f7c4463f9b5f/IMG_2153.jpg Home https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/ab2d95dd-ee0f-4a44-a096-2eacd52a56c8/IMG_2130.jpg Home https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/4d5ff72d-5d61-4390-a128-9fde48a1c12d/IMG_2845.jpg Home https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/5cc9e18d-84a0-4b54-ad4a-2bded5e970ea/IMG_2641.jpg Home https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/724be347-b8a3-43aa-951f-edba69094723/IMG_2625.jpg Home https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/c8c693e0-f0b8-4d81-bf98-4e9f53bad957/IMG_2593.jpg Home https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/1b33e6af-b9bc-4a41-bdad-5ed6a5339016/IMG_2088.jpg Home https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/f7122f78-2df4-476f-93ab-08f80e94c778/IMG_2134+%281%29.jpg Home https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/72d665d5-772e-48d5-88a0-5d85e6fcfa4a/IMG_1844.jpg Home https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/4f57d658-1cde-4c60-97da-5177c1f20c26/IMG_1640.jpg Home https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/6a4ddac7-f646-4fdf-bad6-8459e754f559/IMG_1421.jpg Home https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/3ed23c62-46a5-4d24-affe-f3012664a22f/IMG_2142.jpg Home https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/0ac2d825-a69a-4cf8-9b9a-587b43a81bb1/IMG_2379.jpg Home https://www.connorschances.com/connors-journey daily 0.75 2025-01-10 https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/1581535155820-RC2DZLE1P691XQPCF7A7/baby.JPG Connor's Journey - The perfect baby. Just days before his due date, Connor arrived on September 24th, 2019. Perfectly healthy and everything we could have ever wanted. We were all so in love, including his big sister. https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/1581535025809-8B5QL330XZ8BR06EK7YS/hospital.JPG Connor's Journey - Looking for answers. Our local hospital ran some basic tests that all came back normal. They were at a loss but recommended we follow up with specialists at Lurie Children’s Hospital in Chicago. Here is where Connor’s journey truly began. After two EEG’s, bloodwork, a CT, an MRI, and the analysis of a whole team of doctors, Connor was sent home on an anti-seizure medication pending the results of genetic testing. Six weeks later, we got the answer we never wanted to hear. https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/1581535752222-T9ZX08BHL7REAX1XBWDI/therapy.jpg Connor's Journey - ATP1A3 Gene Mutation. Since receiving Connor’s diagnosis, we’ve connected with incredible doctors, therapists, families and support networks through the Alternating Hemiplegia of Childhood Foundation (AHCF). Connor's episodes have so far been controlled by medication. At a few months old he worked through his developmental delays and low muscle tone at weekly physical, speech, and occupational therapy appointments. Most children don't develop their first hemiplegic episodes until 6-12 months; we waited but they never came. At almost 4 years old we continue to wait for that first bomb to drop on Connor. We wait for the hallmark of the disease to take place - first his eyes may begin to dart back and forth. Then he will likely experience total paralysis of one side of his body. One of his arms or legs may lock up painfully with no way to relieve the cramp. He may develop difficulty breathing or a number of other complications. This episode may last for minutes. Or hours. Or days. Or weeks. So we wait with no guarantee that it will ever come. Until then we run from the cloud that threatens to loom over us. But while we wait we fight for a cure. We fight to find funding to accelerate the incredible research being done. We fight to give Connor and others like him a chance. https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/d6ee8189-2c4b-4283-852b-e70b0d967db9/IMG_1346.jpg Connor's Journey - Rare Progress in a Rare Fight Today Connor continues to defy the odds. We’ve learned the variation of his mutation is just one of 10 known in the world. Connor is an energetic, goofy entertainer who loves to tell stories, dance, use any kind of power tool, and snuggle up to watch movies. His development has continued on track with some hiccups along the way. Recently he was hospitalized after contracting the flu and AHC severely impacted his ability to stand, eat, talk, and even lift his head. He has made tremendous progress at therapy and continues to improve every day. We continue to pray he overcomes these roadblocks in the same inspiring way he has tackled others. https://www.connorschances.com/racetoendahc daily 0.75 2023-08-08 https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/3db30f39-6cc2-4ebf-816c-1c6fef9e4bc1/IMG_2379.jpg Race to End AHC - Join us this year to support an incredible cause AND catch the Bears-Lions game! Join us from 12-3 Sunday, October 1st for an afternoon of football, friends, and auctions at Craft House 711 Plaza Dr. Chesterton, IN 46383 Last year, with your incredible generosity, Connor’s Chances raised over $6,300 toward finding a cure for AHC! This brought the total donations to the Alternating Hemiplegia of Childhood Foundation’s Race to End AHC to over $126,000! Register to join us in person on October 1st or walk in this year’s virtual mission by purchasing a race bib. https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/a9ca599a-f108-4c10-bba0-c6b6473884e7/CC-green.png Race to End AHC https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/1601920864961-412RIYVL67CQ43M370PO/IMG_3103.JPG Race to End AHC https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/1601920877660-QZFGYDTB4SR08QSFM99F/IMG_5935.JPG Race to End AHC https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/1601920891238-RO0HTNLPJD7NUL1QFXDO/IMG_3022.jpg Race to End AHC https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/1601920896154-R37PAPMWZ08983Y0Q0L2/IMG_2285.JPG Race to End AHC https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/1601920895852-EAKZ5W138RDZ4SSURJF3/IMG_2281.JPEG Race to End AHC https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/1601920867704-CKB0Q3VX2D3EDB7H9ZZR/IMG_3017.jpg Race to End AHC https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/1601921669533-4OAYZB280NG08GBI7Q3V/cr1.jpg Race to End AHC https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/1601921669957-7VA56DDNCLETTM7FH2HA/cr2.jpg Race to End AHC https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/1601921671226-K32IQA706I499LRUCJWC/cr3.jpg Race to End AHC https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/1601921671289-OFEMZPVS2KBK58PIYH79/cr4.jpg Race to End AHC https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/1601921669529-UTE9QMNB9Y6PLRA7AOOG/cr5.jpg Race to End AHC https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/1601921669871-PRKJINQZLT7Q7W2G6QDF/cr6.jpg Race to End AHC https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/1601921671353-XET62APIPQYGZ0CXTVQR/cr7.jpg Race to End AHC https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/1601921670772-RV5MRT6RDA9JHS23BU2P/cr8.jpg Race to End AHC https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/1601921671029-LJQES7BIZHO1HYWHZUVT/cr9.jpg Race to End AHC https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/1601921670711-UM1EEC2T9GIV3WYSK3VX/cr10.jpg Race to End AHC https://images.squarespace-cdn.com/content/v1/5e3b2c2bab6ba41bda633396/1601921672471-GOEU0OEUPTOTOMIQT9LB/cr11.jpg Race to End AHC https://www.connorschances.com/projects daily 0.75 2025-05-09 https://images.squarespace-cdn.com/content/v1/5d3b3ed8084b6f00015405ba/1565292381043-ER9AOU1LISY7FVVCNVEQ/20140302_trade+151_0677.jpg Projects https://images.squarespace-cdn.com/content/v1/5d3b3ed8084b6f00015405ba/1565292406252-8560GSO2A1FLMFQVTG60/Aro+Ha_0073.jpg Projects https://images.squarespace-cdn.com/content/v1/5d3b3ed8084b6f00015405ba/1565292525597-WCO0DS8F9PHF2V1U45HY/20140228_Trade+151_0067+%281%29.jpg Projects https://www.connorschances.com/contact daily 0.75 2025-05-09